Hi all, I'm not even gonna proofread this.
Harold is out of the hospital. Long story, but quick version here and more later. Waited at Highland for a while, got the medicines (a lot) and headed out to UCSF. Four hours later - No, Seriously! There was an accident on the bridge--four hours and plenty of conversation and fresh air and seabirds later we arrived at UCSF medical center, where even being turned away was a beautiful enough experience to bring tears to your eyes. They couldn't admit him at this point since he's not an inpatient kind of person anymore. But their triage nurse was great, the doctor was great, and the social worker who gave us AMAZINGLY useful and told us the very best way to get services. That is, do the SS disability first, based on his presumptive disability of the permanent kidney failure, from which the Medi-Cal and Medicare will follow automatically. He warned us how the SS people will be mean and stupid (his language) but that we can go there and be clever. Once that's all in works, go to the UCSF Multiple Myeloma center and say we want in. Anyway, so we brought Harold home, arriving around midnight. For tonight he's at my house (since there will be no one at Sierra and Rosemary's tomorrow a.m.) but we'll need to get him settled more comfortable as soon as possible (there is only one bedroom in this apartment and it's Rosie's.)
Outpatient dialysis and chemo, and hematologist appointments are lined up at Highland can all be kept as scheduled until the UCSF thing get's going, as we all hope it will.
Tomorrow we'll help him get set up with a regular medicine schedule, calendar, and whatever, Rosie will stay home from school and take care of this with him, and I'm going to knuckle down on some homework and start catching up on that.
Then, hopefully, Harold will start getting lots of phone calls, helping to arrange his care for the near future. My home phone 510-601-5762 you can treat as his, and keep using my cell phone to get a hold of me.He's going to need help lining up the right foods (we finally got a definititve list of ok foods.) the right medicine (can someone volunteer to get three OTC ones right away?), transportation etc. Some of this can be done via social services, some not. Time to brainstorm. Meanwhile, I will happily bow out for a while, sleep in, and leave you to it.
That's all, later, gator, and Harold says Hi.
Thursday, October 15, 2009
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